Future Care Capital report: “Unleashing the potential of health and care data”

Future Care Capital, a charity which aims to develop education, training, quality, and standards in health care, has released a policy-focused report describing how the UK “might support data-driven research and innovation to transform health and care.” The report, “Unleashing the potential of health and care data,” describes how the United Kingdom can benefit from the vast amounts of data now available for collection and analysis, but argues that the UK must embrace the development of a robust “data ethics” in order build trust and safeguard the privacy of individuals. Health data cooperatives such as the MIDATA platform cooperative are discussed as viable “user-led trusted vehicles to facilitate health and care data philanthropy in future,” along with other data-ethics proposals.

You can find the full report and executive summary here.